The first part of my appointment was spent sitting with a lovely nurse analysing my chronic pain form, and we spent much of our time talking about our lovely dogs and puppies. After which, I had an appointment with a different specialist nurse who has decided a plan of action for managing my EDS. (About flippin' time!)
So over the next few months I will be trialled on a different type of medication to treat not only my chronic pain, but the nerve pain and issues in my left which seems to be there constantly! Shes also decided for me to have specialist physiotherapy with someone that actually knows what Ehlers Danlos Syndrome is and how to best treat it.
It was such a change to talk to someone and actually have them listen to me! After years of going back and forth from different doctors it was definitely a change.
I will also be going on a chronic pain management programme for about 6 weeks which will consist of a team of physiotherapists, occupational therapists, psychologists and other health professionals. The waiting list is currently a year but I am so excited to start this programme. I am feeling really optimistic about the outcome. Although nothing can cure Ehlers-Danlos Syndrome and at the moment nothing can take away the pain it brings, but at least i'll finally have support from medical professionals on how to deal with it for the future.
-Sophie
xxx
